The first few hours of a baby’s life should be some of the best for a parent. Unfortunately, for Evan’s parents they were also some of the scariest. At just eight hours old Evan began to seize. At three days old he had an MRI of his head. A few hours later the neurologist said the words, “it’s not good.”
“I instantly thought my baby was going to die,” remembers Sara, Evan’s mom. The doctor explained that that was not the case but that Evan was looking at a tough road ahead, filled with lifelong challenges. Evan was born with an absent pituitary gland, which is basically the ‘hard drive’ of the endocrine system. Because of this he has multiple diagnoses that cause him to need constant supervision and medication at least seven times a day. Evan misses a lot of school for appointments and his poor immune system and when he is in school he needs to get medicine. When other kids get curious as to why he has to take medicine he replies confidently, “to keep me healthy!”
Evan needs vigilant care for his health and well-being. There’s a lot of anxiety that comes with his condition since he is not able to fight off common illnesses like so many of the rest of us. He can be easily overheated or dehydrated and if he gets ill or injured the risks for him rise significantly. However, even with all these troubles, Evan loves life and lives it to the fullest with his family.
Now 7-year-old Evan, is a sweet boy with a smile so joyful it’s contagious. He also loves all things Disney and is fascinated by outer space. So, after Evan was deemed eligible for a wish from Make-A-Wish® North Dakota, he wished to go to Walt Disney World® and the Kennedy Space Center. Evan and his family were able to head to Florida to have an experience that they wouldn’t have otherwise been able to have. “Evan is not able to stand in long lines in the sun waiting to get on rides due to the stress that the heat causes him,” explains his mom. But at Walt Disney World wish kids are VIPs and get to go straight to the front, among so many other perks.
His favorite ride was Harry Potter and the Forbidden Journey. Evan also loved getting to go to the Kennedy Space Center and meet a real astronaut. He and his family also didn’t mind the chance to eat banana splits for breakfast at Give Kids The World Village. “This wish was for Evan, and ultimately for our whole family. We made memories that will last a lifetime,” says Sara. They also were able to enjoy time at the beach and visit SeaWorld. This whole trip was a chance for the family to just enjoy being together without having to worry about Evan’s condition. He was able to just enjoy his surroundings and share that infectious smile with everyone he met along the way.
"The look of pure joy and excitement on his face as he took in each new experience, took our breath away."
- Sara, Wish Mom